Sunday, May 15, 2016

DKA and Pneumonia



Boaz has been sick the last couple of days with what we thought was a cold.  His blood sugar has been all over the place as is common with an illness and he has had some ketones though we have been able to get them down at home.  This afternoon he had a slight fever, his blood sugar was in normal range, he had large ketones, was lethargic and nauseous.  All of these (except the fever) is consistent with symptoms of DKA. Knowing this we decided to head to the ER.  Once there they ran some bloodwork, started fluids, and took a chest X-ray.  The X-ray showed some slight pneumonia and the bloodwork confirmed that he was borderline DKA. He gets pretty irrational when he is in DKA and it is difficult to do the tests and such that is needed.  Please pray for peace for him, that he will understand that everyone is trying to help him feel and get better. 

Thursday, May 5, 2016

Bird Seed Feeders



These bird feeders are inspired by this post over at Pink Pistachio.

When I saw the post over at Pink Pistachio I knew the time had come for us to make some bird feeders. The boys had picked up some pine cones at Grandma and Grandpa's and I had promised them we would make some bird feeders, but of course they were still sitting in a box. 

I realized this simple recipe might just be perfect for the pine cones.  I gathered everything up and got to work. 


I made the gelatin and mixed in the bird seed. 


After letting it cool for several minutes, I called the boys to come help me.  


First, we scooped the bird seed with spoons into the cookie cutters and put a straw in at the top to create a hole.  
After we had scooped all we could do, we started rolling the pine cones in the seed/ gelatin mixture.  This worked better than I thought it would! 


We shoved all of this stuff into the fridge to set and waited. When it had set, I took it out and attempted to string them.   Several of the cookie cutter ones broke at the hole but the pine cones held up well!   We did hang one cookie cutter one on the fence but the weight of itself eventually brought it down. 


The pine cones have held up well and we've even seen several birds enjoying their treats!  The boys love to see the birds and had a blast making the feeders!   Head over to Pink Pistachio for the full instructions and let me know how they turn out! 





Sunday, May 1, 2016

Greyson's New Trick

This evening after an exciting day of worship and afternoon birthday parties, Greyson decided to show off a new trick.

He pulled up!   Over the last couple of weeks he has been pulling to his knees and I have started to see signs of him wanting on his feet but he just couldn't figure it out.  But tonight he figured it out all on his own! 

Now, about those birthday parties I mentioned earlier. Grey turns TWO on Wednesday.  Can you believe that?!   Also, Josh's birthday was yesterday so this afternoon we celebrated their birthdays together.  It was a lot of fun! 

Here are a few pics from the day: 




Thanks for celebrating Greyson's new milestone with us! 



Friday, March 25, 2016

Inclusion in the Church

As I was studying for an upcoming blog post I stumbled across this verse and it hit me. Hard.

May the God of endurance and encouragement grant you to live in such harmony with one another, in accord with Christ Jesus, that together you may with one voice glorify the God and Father of our Lord Jesus Christ. Therefore welcome one another as Christ has welcomed you, for the glory of God.  
Romans 15:5-7 (ESV)

This hit me because this is true inclusion. We (special needs parents) spend so much time and energy trying to help our kids be included, and that is necessary, but this, this is true inclusion. Inclusion because, despite all the differences disability brings out and causes, we always have Christ in common. I challenge you to read this verse, memorize it, lock it in your head and your heart and make an effort to welcome and include one another as Christ has welcomed you.
To the families at IPC: thank you.  Thank you for including and accepting my family. Thank you for never thinking twice about my children's disabilities. Thank you for modeling all of this to your children so that my children have found true friends.  Thank you with the utmost sincerity. Thank you. 

Friday, January 29, 2016

In Case You Haven't Heard...


Yep!  You read that right, baby number 4 is on its way! Baby is due September 6, 2016. We had an ultrasound and got to see our little baby.  I am so in love with this beautiful ultrasound pic! Also, just one baby (there was some speculation of multiples from several people!)! We are overjoyed!


Saturday, December 26, 2015

Our Scary Day at the Hospital

Our whole family passed around RSV this week.  We all got over it pretty quickly but any infection can be bad for a diabetic. Boaz was acting tired and had a low grade fever on Christmas Day. I decided he should go see the pediatrician in the morning so we can knock out whatever secondary infection he had gotten (I thought ear infection).  When we woke him up, we check his ketones with his blood ketone meter as per sick day intructions. The meter read 5.4 which is considered large. Ketones are produced when the body uses up fat for energy instead of carbs. They are common (but still dangerous) with high blood sugars but can come with low or high sugar when you are sick. The ketones are a byproduct of the body burning fat and can be toxic if too many get into the blood stream.  We have often flushed large ketones at home (as has many diabetic parents), but know to head to the hospital if he is lethargic or vomitting as these are signs of ketoacidosis (DKA). 

After fighting Boaz, to no avail, to look at his ears, his pediatrician sent us over to the hospital to get labs for infections and DKA.  At the lab, Boaz fought and thrashed and screamed just like he did at the pediatrician.  He totally broke our hearts because we could tell that though he was physically fighting us, there was no fight left inside him. He even whimpered when we check his sugar! 

We left the lab and were driving through Wendy's for lunch when the doctor called and told us we needed to head to the ER.  His bloodwork showed that he was in DKA and we were just a few numbers away from being admitted into the PICU!  We arrived at the ER and told them that we had a diabetic in DKA and we needed to go straight back (which our doctor had told us to say). We ended up waiting about ten minutes (a diabetic in DKA should NEVER have to wait!) and while we were waiting, he vomited- a major sign of DKA.  At that point I got up and went and told them AGAIN that he needs go to straight back. Thankfully, they took us back a few minutes later.  Once we got back, I took Emory and Greyson to the pediatric waiting room while Josh stayed with Boaz for the doctors to start an IV and do a chest X-ray.  The X-ray showed a spot that they thought was pneumonia but later determined it was just puffy from his RSV.  



After a few hours in the ER, we were told we would be admitted. Boaz had fallen asleep and they came in to check his vitals. He was SATing at 88 so we had to wake him up to see if that would bring the SATs up. We had a REALLY hard time waking him up.  It freaked us out!   The nurse wasn't concerned but we were! 

Somewhere between the time of being told we would get a room and actually GETTING a room, my parents came and picked up Greyson and Emory and then my sister and brother-in-law brought coffee and came to visit.  It is so nice having family nearby when we have to stay at the hospital! 

Shortly after they arrived, the nurse took us up to our room. Boaz was still out of it but he was slowly getting better. Before long, he was sitting up and had most of his color back.  His nurse brought in a few Christmas presents from the hospital and that perked him right up! We were all amazed to see him sitting up and playing!  



His next set of bloodwork came back better, which was a relief. We ordered him some dinner (more then I thought he would eat) and he scarfed it all down when it came! He hadn't eaten since that morning so we were happy to see an appetite again! 

At this point, he is eating and playing and watching tv. His ketones were up a little this morning (4.2) so I requested they run his bloodwork again. The talk is that he will be discharged today but we will see what the bloodwork says.   Thank you all for your prayers and visits! Please continue to pray and I will update you as we get more info. 



Wednesday, December 16, 2015

A Talker for Boaz



We (well actually I mean his awesome Speech Therapist) is working on getting Boaz a talker!   A talker is a device, much like a tablet, that Boaz will carry everywhere and be able to use to communicate what he wants and needs by pressing buttons on the talker.  The talker will say aloud what he pressed so it literally will be his voice.  He has been using this at therapy for a little while now and is doing well with it. We are so excited to get this awesome tool for him! Our aforementioned amazing therapist is filling out the billions of pages of paperwork and sending them into insurance so we should have it soon(ish)! Thanks Caitlin!