Thursday, June 4, 2015

Greyson's GI Appointment

    If you haven't already noticed, Grey is super tiny. Up until recently he was still going up on the growth chart, he was just tiny. Lately though he has been a lot more active and plateaued on the growth chart.   We started feeding him more calories to make up for his activity, but our pediatrician agreed that it would be a good idea to see a GI and Nutritionist.  Off to Nemours we went. 


    The exam went really well and the doctor isn't concerned about an underlying problem just yet. He did run a bunch of blood work to check on Vitamins. He also talked about doing a swallow study and X-ray to make sure he is eating well, but Greyson doesn't have any symptoms so they would just be precautionary.  

    After the GI appointment and a short lunch, we met with the nutritionist.  She said the way we were feeding him was perfect.  She gave us some pedisure samples and a goal for his daily calorie intake.  I am supposed to send in his food logs each week.  If he is eating well and still not gaining weight then we will run more tests. For now, we are counting his calories and making sure he gets 750-800 a day. Greyson is blowing our mind with how well he is eating solid foods so this task has been surprisingly easy.  This kid loves to eat! 

    I will keep you guys updated on how he is doing!  The goal is that this will help him gain muscle as well so that he will be able to hold his head and sit in the near future! 

Friday, May 29, 2015

Happy Birthday Emory!

    Emory is 3 today! Happy Birthday little man! You are an awesome little and big brother.  And you are oh-so-stylish! 


Thursday, May 28, 2015

Its here! Its here! ITS. HERE.

    Yesterday we were able to go pick up Greyson's wheelchair/special stroller!  While we were in the waiting room, the man we were meeting for the fitting arrived with the wheelchair and walked right in front of us to go to the back. I told Grey that that was his wheelchair and he squealed and clapped (well, his version of clapping)!  Greyson is doing well in his new wheelchair and you can tell that he is overjoyed. 




    He was also very enthralled with checking out every little hing he could see and touch. 


    I, of course, could not resist personalizing it and adding Star Wars pads to the straps as soon as we got home. 


So thank you all for praying! 









Tuesday, May 19, 2015

Out Of Surgery

    Greyson is out of surgery and doing well.  He was grouchy at first but once he got to eat and they gave him warm blanket he cheered up.  He has been smiling at the nurses, playing with his maraca and trying to eat his IV.  Currently he is cuddling with daddy and falling asleep.   Thank you guys so much for praying!   


He Just Went Back...

    Greyson just went back for surgery.  They said it will be between 30 minutes and an hour and a half.  He will not be getting his lip tie clipped today.  Please keep him in your prayers! 


Monday, May 18, 2015

Prayers for a Minor Surgery

    Tomorrow Greyson will have a minor surgery along with getting his skin tag on his ear removed and hopefully a lip tie clip, though I am still waiting to hear about the lip tie clip.  We are not sharing what this surgery is for the sake of Greyson's privacy but we want you all to know what is going on so you can pray for us! So please keep us in your prayers tonight and tomorrow and I will be sure to keep you guys updated! 

Monday, May 4, 2015

Happy 1st Birthday to Greyson!

    One year.  It has already been one year. One year ago we met our second baby with 3 copies of the 21st chromosome. One year ago I was one day past my due date.  One year ago I got my VBAC. One year ago we started collecting Star Wars things for Greyson because he was born on May the Fourth. One year ago. 

    Greyson has been through a lot in his young life of one year.  But he is THE MOST joyful baby I have ever seen.   His smile is absolutely precious and will make anyone's day. He is thriving in his therapies and babbling constantly.  He is following his bothers around as best as he can with rolling. He is awaiting his wheelchair and stander so that he can join in more with his brothers. We can't wait to see what all Grey accomplishs in this next year. 

    Last weekend we celebrated his birthday with our families with a Star Wars themed party.  Greyson had a blast of course.  Today we celebrated with FroYo as is our birthday tradition and then we had cake at dinner.   Grey actually dug into his cake this time and loved being sung to! Happy Birthday, BB.