More Tests (and pictures!)

     Greyson's breathing is still very rapid so he had another echo done today to see what may be causing it.  I have not heard from the cardiologist yet about those results. Tomorrow, he will been seen by an ENT who will do a scope through his nose and down his throat to see if he has anything obstructing his airway. Pray that these tests will give us some answers on why he is breathing so rapidly! 

Oh! And he drank his whole bottle this afternoon!  It was his first bottle in about two days as he has been getting his feedings through his tube. 

And, of course, pictures:

Photo credit: Stefani Ashley Photography 

Photo credit: Stefani Ashley Photography 

3 Weeks

    Today marks 3 weeks in the NICU. Greyson was supposed to come home with us on Tuesday, but his SATS were not good overnight so he was unable to do so.  He was still gaining weight but had started to eat less. They put a feeding tube in and said he could come home once he ate 8 feedings of 80ml each. This seemed like an impossible goal as he is a lazy nighttime eater. The next day, the doctor changed the order so that he had a minimum over a 12hr period instead. I was very confident that he could meet this minimum and that he would be coming home the next day (which was Friday).  

 

    On Friday, we were expecting to bring him home and instead found out that was not doing well with his SATs again and that he had been put back on oxygen.  Because it is a holiday weekend, we would be unable to get the supplies needed to train us to bring him home on oxygen so Tuesday would be the earliest he could come home. 

    Yesterday, when I went to visit him I was surprised to see how rapidly he was breathing. He sound congested (though his lungs were clear and the nurse could not get anything out of his nose) and he would not eat. I tried really hard but he would suck for a few minutes and then look at me like he was in pain.  He really wanted to eat but could not make himself do it. He did this nursing and with a bottle. He was getting so frustrated so I told the nurse to go ahead and put the rest down the tube.  I then held him for about an hour before I had to go. His breathing did slow down while he was laying on me.  I felt so bad for him.  I was pretty sure that he had a cold, but we wouldn't know until the pediatrician saw him the next day. 

    This morning when Josh called, we were informed that they had done a chest x-ray and were going to do a CBC (complete blood count). This worried us because we were unsure of what exactly they were looking for.  We assumed they were looking for an infection and checking to see if he had fluid in his lungs still. That is exactly what they were doing, and both tests came back fine. So, Greyson has some sort of virus that we now just have to wait out. Pray for him to get better!  We are greatful that he was still in the NICU when he got this cold because he is in the safest place he could be! 

Wordless Wednesday

Not Today

     Greyson's SATs were not very good throughout the night so he will not be coming home today.  They will be keeping a watch on him today and let us know how he is doing. Hopefully he will be able to come home in the next couple of days.  Pray that he will have good SATs and that they will not have to put him back on oxygen. 

We Would Love for You to Hold Him But...

    No, seriously we would. We would love to celebrate and share the joy of his birth and homecoming with you and let you steal lots of baby snuggles, but we can't yet.  Greyson has very low muscle tone and feels like he will slip right through your fingers!  He has to be held just right to make sure he can breathe properly and Josh and I have spent the last couple weeks learning exactly how that is. Trust me, as soon as he seems strong enough to be held by others we will pass him around! Thank you for being understanding! 

TOMORROW

    Greyson has been off of oxygen all day and he passed his car seat test!!  So as long as he does this well tonight, he will be coming home TOMORROW!  Thank you guys for your prayers! 

Pray for No More Oxygen!

    Last night the nurse took Greyson off of oxygen and he is doing well!  Please pray that he continues to do well so he can come home without oxygen!!