Thursday, June 26, 2014

Greyson's Cardiologist Check-Up

    Yesterday, an awesome friend kept the older boys so I could take Greyson to the cardiologist by myself. Everything with his heart has improved: the pressure in his lungs was 30-35 (they want it about 30 or less), his 'leaky valve' was not as leaky as before, and his ASD (hole in his heart) has shrunk a little. He is not improving as quickly as we (including his doctors) would like but he is improving.  We were hoping to be able to take his oxygen off yesterday but he was SATing 88-90 when he was off of it so they are not ready to take him completely off. We did decrease the flow from 1/4 liter to 1/8 liter and he seems to be doing well. Keep praying for his healing! 





Tuesday, June 24, 2014

Corbitt Picks: Freshly Picked Moccasins


What they are: 
    100% Genuine leather moccasins, hand-made in the USA.  Susan Petersen started making moccs with a bag of leather scraps that she picked up at a yard sale. She needed a shoe that fit her son's feet just right, looked cute, and stayed on!  Once she designed the perfect mocc, she asked her brother if she could keep the old windows he was removing from the houses where he was installing windows so she could earn some money to start her business. She spent the summer of 2009 smashing out windows and selling the aluminum to start her business.  With $200 from scrap aluminum, she launched Freshly Picked.  

Why we love them:
    First off, we admire Susan for her entrepreneurship!  We love that she pulled from her resources to design a shoe for her child and devolp her company! Second, these shoes are amazing!  They fit perfectly (true-to-size), and are soft. We love that they do not cause blisters, so Boaz (our Type 1 Diabetic) can wear them and we do not have to be concerned about foot wounds.  We love that they stay on their feet, yet they are easy enough for the boys to take off themselves when we walk into the house. We love the pitter-patter they make when the boys walk. Oh, and they don't stink. At all. Which is a great thing when you have two boys with stinky boy feet!  These moccasins are really a must have, and if you stick around we will be giving away a pair next week! 

Check out Freshly Picked here.  














Friday, June 20, 2014

Please Vote! (Updated!)

***Molly Elizabeth made it into the Top 10!!! Thank you to everyone who voted for her!!! The top 10 videos will now be reviewed by a panel of judges and one person will be chosen to go to Ireland to train and perform in the show!  




THERE IS ONLY A COUPLE OF MORE DAYS TO VOTE! PLEASE HELP US SPREAD THE WORD BY SHARING THIS!  Our sweet and talented friend Molly Elizabeth Gibson is participating in a contest to win a place singing for three concerts in Ireland. This is her dream and what she loves and we would love to have your help with this! The first part of the contest is conducted through social media and the top ten entries with the most votes will be reviewed by a panel of judges. Then one winner gets to be in this show and work with some top people in the industry.
If you are on an iPhone or an iPad, you will need to go to the actual website for your captcha to work. I posted the link for you to cut and past below.

http://www.takethefloor2014.com/go/voice/

Once you vote for Molly singing Ta Cailin Alainn you can scroll down and also vote for her singing Scarborough Fair!




Tuesday, June 3, 2014

World Clubfoot Day 2014

    Today is World Clubfoot Day!  We have just started our journey with Clubfoot. Since Greyson is in the NICU we have been unable to start his castings but we plan on using the Ponseti method. Meanwhile, here are some pictures of his adorable feet! 









Tuesday, May 27, 2014

More Tests (and pictures!)

     Greyson's breathing is still very rapid so he had another echo done today to see what may be causing it.  I have not heard from the cardiologist yet about those results. Tomorrow, he will been seen by an ENT who will do a scope through his nose and down his throat to see if he has anything obstructing his airway. Pray that these tests will give us some answers on why he is breathing so rapidly! 

Oh! And he drank his whole bottle this afternoon!  It was his first bottle in about two days as he has been getting his feedings through his tube. 

And, of course, pictures:




Photo credit: Stefani Ashley Photography 

Photo credit: Stefani Ashley Photography 





Sunday, May 25, 2014

3 Weeks

    Today marks 3 weeks in the NICU. Greyson was supposed to come home with us on Tuesday, but his SATS were not good overnight so he was unable to do so.  He was still gaining weight but had started to eat less. They put a feeding tube in and said he could come home once he ate 8 feedings of 80ml each. This seemed like an impossible goal as he is a lazy nighttime eater. The next day, the doctor changed the order so that he had a minimum over a 12hr period instead. I was very confident that he could meet this minimum and that he would be coming home the next day (which was Friday).  
 
    On Friday, we were expecting to bring him home and instead found out that was not doing well with his SATs again and that he had been put back on oxygen.  Because it is a holiday weekend, we would be unable to get the supplies needed to train us to bring him home on oxygen so Tuesday would be the earliest he could come home. 

    Yesterday, when I went to visit him I was surprised to see how rapidly he was breathing. He sound congested (though his lungs were clear and the nurse could not get anything out of his nose) and he would not eat. I tried really hard but he would suck for a few minutes and then look at me like he was in pain.  He really wanted to eat but could not make himself do it. He did this nursing and with a bottle. He was getting so frustrated so I told the nurse to go ahead and put the rest down the tube.  I then held him for about an hour before I had to go. His breathing did slow down while he was laying on me.  I felt so bad for him.  I was pretty sure that he had a cold, but we wouldn't know until the pediatrician saw him the next day. 

    This morning when Josh called, we were informed that they had done a chest x-ray and were going to do a CBC (complete blood count). This worried us because we were unsure of what exactly they were looking for.  We assumed they were looking for an infection and checking to see if he had fluid in his lungs still. That is exactly what they were doing, and both tests came back fine. So, Greyson has some sort of virus that we now just have to wait out. Pray for him to get better!  We are greatful that he was still in the NICU when he got this cold because he is in the safest place he could be!