Greyson's Swallow Study

    

    This morning we woke up early and headed to Jacksonville for a Swallow Study for Greyson.  Well actually, we woke up late, but we made it there on time, by God's grace! 

     Greyson wasn't allowed to eat anything 6 hours before this study so we fed him in the wee hours of the night and then held and played with him while we waited for his Swallow Study. I went back with him fed him the sippy full of 'chalk tasting liquid' for the study.  They took X-ray pictures of his stomach and esophagus while he drank it and after it had time to leave his stomach.  After the study, we went to lunch and then headed to the Kid's Walk to kill some time before his GI and Nutrition appointment.  The boys loved the view of the trucks and had a blast playing up there. 

     At his GI/Nutrition appointment we discussed his diet and how to pack more calories in. The results from the Swallow Study were normal and so for now we are just going to continue his high calorie diet. We will see the GI in November again and if Greyson hasn't gained weight by that appointment then we will talk about the next steps for a G-Tube (tests and so forth). Please keep us all in your prayers!  At this point we just want Grey to gain weight and if he needs a g-tube to accomplish that, then that is what we will do but do pray that he will be able to put on weight on his own! 

The Corbitt's Homeschool

    Two weeks ago we started preschool with Boaz and Emory.  So far each week we are studying a letter, working on writing, working on reading, and doing lots of playing!  I am going to be posting about what we study at the end of the week. We are just starting out so come check out the blog and learn along side us as we learn what it looks like to homeschool our two crazy sons, one with only 2 copies of the 21st chromosome and one with three.

Boaz Gets a Bike- Our Night at the Ambucs Fundraiser

 

    Last night we had the very special opportunity to attend the Ambucs Fundraiser.  Boaz was presented his special bike at this event and we all had a blast!  Ambucs 'is a non-profit service organization consisting of a diverse group of men and women who are dedicated to creating mobility and independence for people with disabilities.'  They provide AmTrykes to people who are unable to ride a traditional bike.  They do this through very generous people who provide funds to buy these bikes.  Last night we also had the opportunity to meet the man who fully funded Boaz's bike.  I can't even express how amazing that was!

    Boaz had that celebrity walk down by the time we left! He was even doing it down the halls of therapy this morning!  He was also on tv last night and this morning! We recorded it for the boys and, of course, they love to watch it.

    Emory is SO proud of his brother!

    Here is the link to watch him on the news!

Greyson's GI Appointment

    If you haven't already noticed, Grey is super tiny. Up until recently he was still going up on the growth chart, he was just tiny. Lately though he has been a lot more active and plateaued on the growth chart.   We started feeding him more calories to make up for his activity, but our pediatrician agreed that it would be a good idea to see a GI and Nutritionist.  Off to Nemours we went. 

    The exam went really well and the doctor isn't concerned about an underlying problem just yet. He did run a bunch of blood work to check on Vitamins. He also talked about doing a swallow study and X-ray to make sure he is eating well, but Greyson doesn't have any symptoms so they would just be precautionary.  

    After the GI appointment and a short lunch, we met with the nutritionist.  She said the way we were feeding him was perfect.  She gave us some pedisure samples and a goal for his daily calorie intake.  I am supposed to send in his food logs each week.  If he is eating well and still not gaining weight then we will run more tests. For now, we are counting his calories and making sure he gets 750-800 a day. Greyson is blowing our mind with how well he is eating solid foods so this task has been surprisingly easy.  This kid loves to eat! 

    I will keep you guys updated on how he is doing!  The goal is that this will help him gain muscle as well so that he will be able to hold his head and sit in the near future! 

Happy Birthday Emory!

    Emory is 3 today! Happy Birthday little man! You are an awesome little and big brother.  And you are oh-so-stylish! 

Its here! Its here! ITS. HERE.

    Yesterday we were able to go pick up Greyson's wheelchair/special stroller!  While we were in the waiting room, the man we were meeting for the fitting arrived with the wheelchair and walked right in front of us to go to the back. I told Grey that that was his wheelchair and he squealed and clapped (well, his version of clapping)!  Greyson is doing well in his new wheelchair and you can tell that he is overjoyed. 

    He was also very enthralled with checking out every little hing he could see and touch. 

    I, of course, could not resist personalizing it and adding Star Wars pads to the straps as soon as we got home. 

So thank you all for praying! 

Out Of Surgery

    Greyson is out of surgery and doing well.  He was grouchy at first but once he got to eat and they gave him warm blanket he cheered up.  He has been smiling at the nurses, playing with his maraca and trying to eat his IV.  Currently he is cuddling with daddy and falling asleep.   Thank you guys so much for praying!